|
Sign In to gain access to subscriptions and/or personal tools.
|
Evaluation of the information needs of patients with chronic obstructive pulmonary disease following pulmonary rehabilitation: a focus group study
S. Rodgers
Trent Research and Development Support Unit, University of Nottingham, Nottingham, UK, sarah.rodgers{at}nottingham.ac.uk
J. Dyas
Trent Research and Development Support Unit, University of Nottingham, Nottingham, UK
A.W.P. Molyneux
Sherwood Forest Hospitals NHS Trust, Nottinghamshire, UK
M.J. Ward
Sherwood Forest Hospitals NHS Trust, Nottinghamshire, UK
S.M. Revill
Sherwood Forest Hospitals NHS Trust, Nottinghamshire, UK
Aims: This study aimed to understand patient information needs and how best to meet them in order to improve rehabilitation provision and aid disease self-management by exploring experiences of people who had recently completed a pulmonary rehabilitation programme in a community hospital setting.
Methods: Qualitative research using focus groups was undertaken with 23 patients who had completed pulmonary rehabilitation within the previous four months. The focus groups were tape-recorded and contemporaneous notes made. The tapes were transcribed verbatim and template analysis was used to develop themes.
Findings: The key information needs were for a full understanding of the disease to be generated for patients, their families and the wider public much earlier in the disease process and preferably at the point of diagnosis. Patients perceived that they needed to come to terms with the condition. In order to improve disease self-management feelings of anxiety and frustration should to be addressed with the suggestion that individual counselling might be made available through the rehabilitation programme. The need for continued support was highlighted with an emphasis on peer group support activities.
Conclusions: The findings have implications for primary care in terms of unmet needs in the early stages of the condition and pulmonary rehabilitation programmes in terms of providing individual counselling and ongoing peer group support to aid disease self-management. Chronic Respiratory Disease 2007; 4: 195—203
Key Words: chronic obstructive pulmonary disease • information needs pulmonary rehabilitation
References
- Chronic Obstructive Pulmonary Disease. National clinical guideline on management of chronic obstructive pulmonary disease in adults in primary and secondary care. Thorax 2004; 59(Suppl l): 1—232 doi:10.1136/thx. 2004.022707[Free Full Text]
- Lacasse Y., Brosseau L., Milne S., Martin S., Wong E. et al. Pulmonary rehabilitation for chronic obstructive pulmonary disease. (Cochrane Review). The Cochrane Library- Oxford: Update Software, 2003; issue 3.
- Morgan MDl, Calverley PMA, Clark CJ, Davidson AC et al. Pulmonary rehabilitation. British Thoracic Society Standards of Care Subcommittee on Pulmonary Rehabilitation Thorax 2001; 56: 827—34.
- Ward JA, Akers G., Ward DG, Pinnuck M., Williams S., et al. Feasibility and effectiveness of a pulmonary rehabilitation programme in a community hospital setting. 2002; Br J Gen Pract 52: 539—42.
- American Thoracic Society/European Respiratory Society statement on Pulmonary Rehabilitation. Am J Respir Crit Care Med 2006: 173:1390—413.[Free Full Text]
- White R., Walker P., Roberts S., Kalisky S., White P. Bristol COPD Knowledge Questionnaire (BCKQ): testing what we teach patients about COPD. Chronic Respir Dis 2006; 3: 123—31.[CrossRef]
- Monninkhof E., van der Valk P., van der Palen J., van Herwaarden C., Partridge MR et al. Self-management education for patients with chronic obstructive pulmonary disease: a systematic review. Thorax 2003; 58: 394—8.[Abstract/Free Full Text]
- King N. Using templates in the thematic analysis of text. In: Cassell C, Symon G. (eds). Essential guide to qualitative methods in organisational research. London: SAGE, 2004.
- Hyland ME, Jones RCM, Hanney KE Lung Information needs questionnaire: development, preliminary validation and findings. Respir Med 2006; 100: 1807—16.[CrossRef][Medline]
[Order article via Infotrieve]
- Dowson CA, Kuijer RG, Mulder RT Anxiety and self-management behaviour in chronic obstructive pulmonary disease: what has been learned? Chronic Respir Dis 2004; 1: 213—20.[CrossRef]
- Brooks D., Krip B., Mangovski-Alzamora S., Goldstein RS The effect of post-rehabilitation programmes among individuals with chronic obstructive pulmonary disease. Eur Resp J. 2002; 20: 20—9.[Abstract/Free Full Text]
- Bodenheimer T., Lorig K., Holman H., Grumbach K. Patient self-management of chronic disease in primary care. JAMA 2002; 288: 2469—75.[Abstract/Free Full Text]
Chronic Respiratory Disease, Vol. 4, No. 4,
195-203 (2007)
DOI: 10.1177/1479972307080698
 CiteULike  Complore  Connotea  Del.icio.us  Digg  Reddit  Technorati  Twitter What's this?
This article has been cited by other articles:
|
|
|
|
 
Dr. R. Jones
Too little, too late the patients' perspective on education for COPD
Chronic Respiratory Disease,
November 1, 2007;
4(4):
189 - 190.
[PDF]
|
|
|
|
|
